I was recently diagnosed with Dupuytrens on my right hand, VERY mild. A year later, I had a pyogenic granuloma on my left second toe. It was removed a month ago. A few weeks after it was removed I noticed a lump on the arch of my foot seemingly attached to the tendon that attaches to my big toe. It does not hurt and is soft and moveable (for now). It is sounding like it may be Ledderhose disease since one in 4 people that have dupuytrens also gets Ledderhose? My right shoulder also suddenly started hurting and my doctor thought it was an injury from exercise but now I am wondering if the pyogenic granuloma, dupuytrens, growth on arch, shoulder pain are all related somehow signifying that something else is going on in my body. Most Doctors tend to treat each separate but I read where dupuytrens may signify some sort of liver or lung problem. I want to cure these things naturally and do NOT want the recommended radiation for the Ledderhose nor do I want to have this foot growth enlarge causing pain when walking. It does not hurt now. Do you know if these are all related or perhaps something else is going on in my body I should convince a doctor to pursue?
Thank you for your help.
Without getting into a lot of the details, pyogenic granulomas are small, red/pink to purple bumps on the skin that bleed easily due to an abnormally high number of blood vessels they each contain. The name pyogenic granuloma is misleading for two reasons: It is not a true granuloma, but it is actually a capillary hemangioma. And it is not infectious as the pyogenic part of the name would indicate since the origin is typically hormonal or traumatic. What concerns me about your story is the fact that pyogenic granulomas are almost always found on the top half of the body (75% occur int he mouth) and most often in pregnant woman (they are sometimes called pregnancy granulomas) as well as in children or younger adults. If this is not the case with you, I strongly suggest that you get a second opinion if there is any other irregularity about your health or extremities in general that arises to give you concern.
Many times I encounter people whose Dupuytren contracture starts after some type of trauma– not only trauma to the hand as you would naturally assume, but to trauma elsewhere in the body. It is almost as though the trauma (like the trauma of surgery) somehow triggers a latent tendency for excessive fibrosis to occur elsewhere in the body as with Dupuytren’s contracture in the hand or Ledderhose disease in the foot.
Yes, Dupuytrens and Ledderhose often occur together in those who are genetically predisposed.
If you have to convince your doctor to purse a course of action or investigate your problem further, you have the wrong doctor. Medical doctors by their training and personalities as a group tend to be “team players” and to not think outside of the box. Please. I am not saying that MDs do not think; I am saying that they think within a narrow and pre-defined range of information that has been approved for them to use. Anyone who is a medical doctor and prefers or needs to think independently, or to use innovation, will go into research. Those MDs who are comfortable doing what they are told and following the narrow paradigm of how the AMA, FDA, hospital review boards tell them they MUST practice, will go into practice where they will work like everyone else in their profession. This is why when you go to four different MDs with a problem they will all want to do the same tests and they will want to know what the other MDs said about the problem, and will come to pretty much the same conclusion. Organized medicine does not want and cannot afford to have MDs going out on their own and experimenting with patients; they must interpret test results as they are told to do by their peers and regulators; they must use drugs only as they are allowed and told to do; they must not operate in new and novel ways. To put it another way, an MD will get into trouble if he or she does independent thinking and digs too deeply into the practice of medicine and the healing arts beyond what is given to him or her as the standards of practice. This is why some MDs get so frustrated and discouraged with the practice of medicine; this is why a few will either eventually quit or go radical by engaging in “holistic health care” in which they declare themselves independent and rather radical in their approach to healthcare.
Ask your average MD, “Do you know if these different things – Dupuytren’s contracture, pyogenic granuloma, surgical removal of pyogenic granuloma, Ledderhose disease – are all related or perhaps is there something else is going on in my body”? By his or her education, training and personality characteristics he or she will not do much if any independent thinking, but will only say something like, “I have not read anything like that. And the research says that it is not possible. So therefore I do not have any information for you about that.” MDs work with information that has been given to them by others. If an idea is not an approved idea they are not comfortable with it, and they are safest not using it and actually ridiculing it. This is the only safe answer that the average MD can use to practice medicine because they all know that if they think or act independently they can get into trouble. Heck, they have hospital committees watching what they do, how they test, how they diagnose, how they prescribe, how they operate, and what kind of results they get. If they practice outside the standards of medicine they have a whole lotta explaining to do. No one wants trouble,eh?
Since I am not an MD, but a retired Chiropractic Physician, who has thought independently all of my professional life, I will say that my experience says there is something to what you have observed. It suggests to me a weakness or irregularity of the immune response perhaps related to a systemic allergic reaction. My recommendation is that if you see larger health issues at play in your life that you should seek out a local holistic MD who will look at you with a different set of eyes and ears than the garden variety MD possesses.
In the meantime I also suggest that you read a bit more from the DCI website about the use of Alternative Medicine to support and enhance your natural ability to reverse the soft tissue changes of Dupuytren’s contracture. Many people have slowed down, or reduced, or even eliminated their Dupuytrens this way when it is done as described here using an aggressive and faithful treatment approach of several months care.
Please let me know if I can do anything more to assist you. TRH
Successful Dupuytren treatment demands that you know the exact limit of your hand contraction each step of the way
The Dupuytren Hand Contracture Caliper is a requirement for good results with self-directed Dupuytren treatment. You must know how much your hand is contracted and finger movement is limited in order to guide your therapy plan to a successful conclusion. Otherwise you are only guessing about your hand contracture, and that does not help you regain full use of your hand.
People are wrong to only pay attention to the obvious palm lumps and finger cords of their Dupuytrens contracture. The Dupuytren Hand Contracture Caliper makes it easy to know exactly how much their finger contracture is affecting hand movement and flexibility.
The DCI caliper with built-in measurement scale will help you easily and accurately determine reduced finger and hand movement caused by Dupuytrens disease. With it you will document how far your finger contraction is kept flexed toward the palm or wrist, as well as the other important measurement of how far your palm is kept from flattening against a table top or other flat surface. These two numbers are essential baseline measurements to determine progress, or lack of progress, of your self-directed Alternative Medicine Dupuytrens treatment.
If you do not know the true state of your bent finger and hand contracture at the start of care you will never know exactly how much improvement you have made, or if you have made any at all. You must know if you are making actual progress over your Dupuytren hand problem because this information will tell you if and when to change your treatment or perhaps not change it at all.
Many people think, “I’m not stupid. I will know if my finger is improving. I do not need to measure.” But they find after a few weeks of treatment they are totally unsure if the progress they think they have made is real or just a hopeful product of their imagination. Armed with this valuable information you will know if and when to change a treatment plan that is not working, or to keep following a treatment plan that it is working. Either way, for best treatment results you must not guess about any of this.
Using the DCI caliper to measure contracture of the hand:
- The caliper is tightened or loosened by using the large plastic knob at the pivot in the middle. The caliper has two pairs of “legs.” The “inside legs” are used to measure the inner distance of a closed surface, and the “outside legs” are used to measure an outside surface. The inside legs of the caliper are straight but bent only at the very tips to look like the letters “J” and “L.” The outside legs are rounded to look like big pincers or the letter “C.” To measure with either the inner or outer legs the caliper must be positioned so the straight legs are crossed over each other and the curved millimeter (mm) scale to provide a distance reading, just as you see it in the picture, above.
- Adjust the large plastic knob in the center of the caliper so the legs move with moderate resistance; this assures your measurements are accurate. The knob must be loose enough that the legs move with some ease, but tight enough that they do not move once you put them in position.
- Each line on the curved scale represents 2 millimeters (mm). The scale ranges from 0 to 200mm.
- Position the tips of the straight inside legs so the “J” and “L” touch each other. Notice that the edge of the moveable leg touches the “O” on the mm scale, meaning no millimeters. When the tips of the inner legs are 50mm apart the tips of the outer legs are also 50mm apart.
- Either half of the caliper – the “inside legs” or the “outside legs” – can be used to document improvement of your limited finger and hand movement. Use either side or pair of legs that is more comfortable or whichever one works best for your circumstance since the measurement will be the same.
Marking hand and fingers for measurement
Each time the hand is measured the same pair of reference points must be used, and the information must be written down for later comparison using the “Caliper Hand Measurement Chart” you received with your DCI Hand Caliper.
It is best to use naturally occurring landmarks on the fingers, palm or wrist of your hands if they are small enough to make a precise measurement, and if you will be able to easily find the same landmark each time you use the caliper for hand and finger measurements.
Locate a small and easily recognized natural landmark on the involved finger and hand. These two points should be obvious and easily located each time you measure your progress. Carefully place a dot precisely at the point you wish to use each time you measure. Using large dots or different point locations make inaccurate readings that cannot be compared over time, and this does not help you to know if you are progressing or not.
- When taking measurements for the first time write notes or make a quick drawing of the local area that explains each point location in a way that is easy for you to understand and duplicate. For easy reference, write the notes that describe the points you are using on your “Caliper Hand Measurement Chart.
- Mark you skin with a fine felt tip or ballpoint pen to clearly identify the exact points you will use each time to make your measurements.
- Examples of natural landmarks on your fingers, hands or wrists that will increase the speed and accuracy of your measurements:
a. Where a fingernail has a natural vertical ridge or flaw that does not change.
b. Where the fingernail bed and skin touch at the end of the finger (that little corner location where you might sometime get a hang nail). Use the same fingernail corner each time.
c. The very tip of your finger; it is the highest point when you look at your finger from the front and from the side view.
d. At the base of your palm, on or near the wrist crease, find a point where two or three creases meet to form a “V,” “X” or “Y”.
- Slightly bend your wrist. Notice if one or two wrist creases create a nice landmark that will be easy to locate each time you want to measure your progress. A crease or wrinkle of skin may cross over a vein, tendon, scar or blemish, making a precise reference point.
If all else fails you can locate the center of the wrist crease using a ruler, although this is much more difficult and less precise.
Measure distance bent finger flexed toward palm
Each time you how close your finger is kept flexed toward your palm you must use the same two reference points on the finger and palm or wrist. If you have Dupuytren contracture of one finger you will use two reference points. If two fingers are flexed toward the palm of one hand, three reference points are needed (one on each finger tip and a single point on the wrist). Three fingers require four points for measurement. You will make a mark on the fingertip of each involved finger and you will use the same point on the palm or wrist as a reference point for each finger.
- Mark each involved finger – Find a natural landmark or locate the center of the fingertip, as described above, of each finger affected by Dupuytren contracture. Place a small precise mark at each point.
- Mark the palm or wrist – Find a natural landmark or measure for the center of the wrist crease, as described above. This wrist point does not have to be in direct line with the involved finger(s); it can be off to an angle or side of the wrist. The only rule is that you use these same points each time you measure.
a. The wrist point can be located on the palm-side at the center of the wrist, or at an angle off toward the thumb or little finger side of the wrist crease; it can be anywhere on the crease as long as it easy to locate accurately and can be duplicated each time a measurement is made.
b. If two or more fingers are involved on the same hand, the same palm or wrist point is used as the reference point for all fingers of that hand.
c. Open your hand as far as possible.
d. Place the tips of two caliper points (either inner or outer legs) on the small dots you selected at the finger and wrist points.
e. Write the millimeter (mm) distance, as shown on the curved caliper scale, on your measurement record.
Measure amount of hand contracture
Each time you measurement your inability to flatten your hand on a tabletop, you must use the same two reference points.
If you find that only one side of the hand is kept from flattening out, and the other can be made flat, then you need to only measure the side that cannot be flattened. If both sides are kept from flattening, then you should measure both the little finger and index (pointing) finger side of the hand.
- Locate a deep wrinkle or crease that is near the knuckle that cannot be flattened. Place a small dot at the end of the selected crease or wrinkle to serve as the landmark or reference point for that joint.
- Mark the side of the finger joint or knuckle that cannot be flattened against the table top. The 1st point can be anywhere on the side of the knuckle that is a naturally occurring landmark; it does not have to be in the center of the joint.
- The 2nd reference point in this measurement is the tabletop the hand is resting on, and therefore does not have to be marked.
- Place your hand on a table top or similar surface. Press the hand down firmly so the palm is as flat as you can make it.
- Using one leg of the inside caliper (with the long straight legs), allow it to touch the dot on the side of the knuckle.
- Using the other leg, place the tip on the flat surface directly below the mark you placed on the knuckle being measured. Do not place the tip of this leg at an angle or far from the knuckle being measured. If you are not careful with this tabletop point selection you will add a variable to the measurement that will make comparison of other measurements invalid and inaccurate.
5. Write the millimeter (mm) distance, as shown on the curved caliper scale, on your measurement record.
6. To measure the distance the joint on the other side of the hand is being kept from flattening against the tabletop, repeat steps 2-7.
This is the measurement form that comes supplied with the caliper to record increased finger and hand movement. You will need good records because they are essential to know when to alter your Dupuytren treatment plan and how to do it.
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